Tuesday, December 22, 2009
Many thanks and sincere gratitude to all those who have been of service, sent flowers and donated to the Hope Trust Fund and the leukemia foundation. Ashley continues to be sustained by your prayers and love and the Spirit. Thank you!
Thursday, December 17, 2009
Monday, December 14, 2009
Sometime next week we would like to compile all of these stories into a book and give a copy to Ashley and a copy to the Ashworth family.
Sunday, December 13, 2009
The news about Robert is a little better than it was yesterday. The word went around that Robert only had 24-48 hours, and we know that this was very stressful news for everyone that heard it. There was a time in the morning that his condition was very critical. His resting heart rate went over 200 bpm and there was concern that he would go into an irregular heart rhythm and require resuscitation. The doctors were able to adjust his ventilator settings and treat his pH levels to bring his heart rate down to a safer rate. It has been determined that he has ARDS (Acute Respiratory Distress Syndrome), which is inflammation of the lungs. ARDS is a secondary response to some other stress. The cause has still not been determined since all the cultures have come back negative. Robert's condition is still very critical and he is receiving supportive care for ARDS, which means he is breathing with the assistance of a ventilator. He's hooked up to a plethora of monitors and is being watched very closely. His condition has been fairly stable since yesterday afternoon. The diagnosis of ARDS gives hope that Robert will be able to pull through this, although his condition could change from day to day or even hour to hour at this point.
We are moving forward with faith and so appreciate all who join their faith with ours. We know that Robert is in God's hands and He is in charge of the outcome. We continue to believe in miracles and to ask for one for Robert. Ashley is holding up with her usual optimism and courage and advocating for the best care possible for Robert.
*We will be posting if there is anything new. If there is any specific information that you would like to know or questions that you have please feel free to leave us a comment and we will answer it in the following post. It has been an overwhelming weekend, but we do plan to continue posting at least once a day.
Once again, thank you for your fasting and prayers on Robert and Ashley's behalf. We have all felt their power this weekend, and your love!
Friday, December 11, 2009
While they have a good plan to handle this new development it was still hard news to hear, and it took a day to process.
Currently Robert is still on 100% oxygen, his blood oxygen saturation is between 92-95. His pneumonia symptoms are a little worse today than yesterday. They are a little concerned about his brain activity as well, because even when they bring down his sedation levels, his brain activity doesn't increase. Ashley is asking that they change his pain medication from morphine to dilauded (or something else), because she remembered that he had that problem last time he was in the ICU and it helped. We're hoping that will help his brain activity right now. The docs have gotten back some of his test results, but so far everything has come back negative.
Ashley would like to ask anyone who can to participate in a fast for Robert this weekend (Saturday or Sunday). We are announcing in our wards here to fast on Sunday, but please feel free to fast tomorrow if that would be better for you. We are fasting for Robert's healing, but also specifically for his doctors to be guided to know what is causing his pneumonia and how best to help him heal. Please also pray for his speedy recovery, so that he can get up to Salt Lake quickly.
Thank you for all of your continued support and prayers. Ashley feels them, they are keeping her going; and she knows Robert feels them too.
With love and gratitude!
Wednesday, December 9, 2009
Tuesday, December 8, 2009
Monday, December 7, 2009
"Gratitude unlocks the fullness of life. It turns what we have into enough, and more. It turns denial into acceptance, chaos to order, confusion to clarity. It can turn a meal into a feast, a house into a home, a stranger into a friend. Gratitude makes sense of our past, brings peace for today, and creates a vision for tomorrow." -Melody Beattie
Thursday, December 3, 2009
Thursday, October 22, 2009
Monday, September 28, 2009
Friday, September 25, 2009
After we arrived home and Robert was in bed and had gotten more scratch time he was ready for bed, so we said a prayer together. Robert decided he wanted to say it, and I though he might actually fall asleep, since he was so out of it from the pain meds they gave him in the ER. So he was saying the prayer and was staying awake and then right at the end he says "Please help me keep feeling better and healing, so that one day I can coach little league baseball." He finished and then I look up and his eyes are closed. I just started laughing and he wakes up and is like "Whattt? I am sorry, I fell asleep. Did I finish praying?" I was in tears from laughing. It was the cutest, most hilarious thing he has done in a while. He didn't remember saying it, but we laughed about it today. I know one day he will get that chance to coach a little league team, and I can't wait to see it.
Robert is doing well. He didn't gain too much more weight this week, but he didn't lose any. So that is great. We are still working on his appetite. He has been feeling a lot better, and the IV nausea medicine is still helping a lot. Things are going great and we are hoping to be heading home by the end of October. We miss Vegas!
All our love.
Thursday, September 17, 2009
Robert had another Italian Greyhound while he was growing up and I have always thought they were stinkin' cute, so when we got married we often talked about getting one. Daisy is a great and loving dog. Robert is glad I made him wait to get a grey greyhound, because they are harder to find, but we held out and found Daisy and she is perfect for us.
Daisy is always patient when I smother her with kisses.
Daisy has this thing for Robert's ears. Not mine. Mostly Roberts. She is always licking them and sticking her cold wet little nose in there... or she is trying anyway.
I love this picture of Daisy and Robert having some bonding time while she was visiting us.
Robert has finally been able to start eating again this week. Yay! He has been on IV nausea medication that I give him when he needs it and it has been helping so much. He is still on TPN, but we are hoping he will be able to keep eating more and more and get off TPN in the next couple of weeks. Robert is still getting weened off his anti-rejection medication and he will be completely off it next week. We got a call this morning that Robert has been positive for CMV Virus 2 weeks is a row, so they are going to switch one of his antibiotics to one that is stronger to get it in check. Things are looking up and Robert has been feeling better. Thank you for all your prayers and love. We appreciate them so much.
All our love.
Tuesday, September 8, 2009
This just really made me laugh, I am so glad I got pictures of it. It just shows a little bit of the bond Daisy and Robert share. It's very cute.
Robert is doing well. Thank you everyone who has prayed and fasted for him extra this week. We appreciate it so much. Robert has still been having a hard time eating, because of his tongue sores, and his nausea, and he is just all in all miserable some days. It has been wearing on him mentally and emotionally. We are hoping the test results will show what is going on so his doc can get these things under control. He had his last test this morning, the one he wasn't looking forward to... the dreaded colonoscopy. Robert said "I shouldn't be getting a colonoscopy until I'm 50, I should have 25 more years..." Haha. The doctors just wanted to make sure they are covering all the bases of his GI tract. It wasn't too bad, and they took really good care of him and he is doing well now. We go to the Clinic on thursday, so I will let everyone know the results then. Please keep praying for Robert. We are so grateful for all of you, and your support.
All our love.
Saturday, September 5, 2009
Tomorrow, Sunday, September 6th, we invite any of you who would like to join us to fast for Robert. He had a GI scope on Friday and will have some more testing this coming week. He once again has sores in his mouth--they are lining the sides of his tongue this time. He continues to be plagued with nausea and is really struggling to eat, drink, and talk right now because it hurts or makes him feel so sick.
We would appreciate you joining your faith with ours as we fast and pray for Robert tomorrow. We are praying that the doctors will be able to determine the cause of his sores and GI upset as well as the best things to do for him. We are also praying that he gets feeling better really soon and that he shows signs of Graph vs. Host Disease (GVHD).
Thank you for your continued support, love, and prayers. They mean more than we can express. All our love.
Monday, August 31, 2009
I wonder what his wish was?? I have an idea... but let's not talk about it, we want it to come true after all. I love birthday wishes.
Robert reading his cards in his new sunglasses that I got him for his big B-day! He loves them. He wears them to bed, and in the shower. I told him it crosses the line to wear them while reading. I tell him, "think about your retinas"... So he does. What are sidekicks for, if not for protecting your retinas? Huh? Exactly.
Doesn't he look seriously delicious in them though? Okay, TMI? Sorry... We had a fun day, relaxing and eating donuts, we even went to Best Buy to look at laptops. His parents are getting him a new one for his b-day. I think I was more excited about it than he was. Our current laptop is a dinosaur.
Oh how I love him. Isnt he just so lovable? Anyone who meets him loves him. It's impossible not to, I think. Although, I am quite biased.
Robert is doing well, the doc is weening him off of his anti-rejection meds in hopes to see some GVHD pop up. He should be completely off of it in the next couple of weeks. Robert is still really nauseated, but some days are better. He is still on IV nutrition during the nights, and we are tying to maintain his weight and help him gain... not lose any! He is doing well for the most part. We have been so blessed and we are grateful for the love and support you all offer us. We apologize for not updating as much since we have been out of the hospital, but we hope to start posting more. Please continue praying for our Super hero, for his healing an health. We love you guys! You're the best!
All our love.
Wednesday, August 26, 2009
Sunday, August 16, 2009
which lies dormant in the broad daylight of prosperity; but which
kindles up and beams and blazes in the dark hour of adversity."
As you all know this friday was my birthday! Robert and I had a fun time hanging out, and spending time together. We also enjoyed these beauties:
They were delicious. We got them from Mini's cupcakes. So cute and so yummy.
And these babies, I have been lusting after for a while. Mine and Robert's fam got them for me and I am super duper excited about them! Thank you to everyone for the cards, email, and phone calls giving me all the birthday love. I appreciate it so much!
Robert has been doing better each week. He is still getting IV nutrition at night time, but he is also eating more and hasn't been getting nauseated as much. He gets tired and still rests a lot, but all in all things are slowly improving! And we are so grateful. Thank you for praying for us and loving us! You are the best!
All our love.
Tuesday, August 11, 2009
If you'd like to help them celebrate by sending them an email greeting, please send it to firstname.lastname@example.org.
If you'd like to send them a card or another type of birthday surprise, you may email Ashley at the above email address or send an email to email@example.com to ask for their mailing address. For security and privacy reasons, we are choosing not to go public with their current address on the blog.
If any of you live or visit the Salt Lake area while Ashley and Robert are staying there, please pay them a visit! They are able to receive and greatly appreciate visits from friends and family. Robert is pretty much homebound except for his clinic and doctor's visits. Just call and let them know you'd like to stop by--if you need their phone number, you may email one of the above email addresses.
Robert Update: Robert went to the clinic today. His numbers are steady. His patelets are low, but not low enough to require a transfusion. Low platelets are a normal occurrence at this point. For another week, he will receive TPN nutrition while he sleeps to ensure that his nutritional and hydration needs are met.
Robert and Ashley keep themselves busy with a little walk on the days Robert feels well enough. Ashley has been cooking and baking to her heart's content. She told me about a Pesto Artichoke Calzone she made last night (Sounds divine! She said it was delish.). They also sleep (especially Robert) and read quite a bit. They are doing well and are in good spirits. Robert is getting better all the time. His taste buds are slowly returning. We're still waiting for some signs of Graft vs. Host Disease. Thank you for your continued prayers in their behalf.
Monday, August 3, 2009
A little of this.
And even a nap. Or two.
Ashley and I planned a menu and a grocery list and then we shopped our hearts out.
We had a blast at the farmer's market, even if it did start before 10am. Of course all of our shopping and planning led to this...
Raclette, so yummy, is a dinner where everyone cooks on the grill in the middle of the table. It makes for a slow and enjoyable dinner together with plenty of time for conversation.
Artichoke dip. Get in my belly!
Some more goofiness, but we were all business. Really.
Chocolate peanut butter cookie.
These were so delicious, honestly I am ready to make them again.
Homemade yellow cupcakes with a raspberry buttercream. These cupcakes reminded Ashley and I of sugar cookies. But light and airy. So scrumptious.
I had so much fun, and ate way too much. But I have one question...
Thursday, July 30, 2009
On his way out of the hospital. We will miss all of our wonderful nurses. They were awesome, but we were glad to go!
Getting some R&R and also some food at the same time! Robert is still getting IV nutrition(that white bag), since he can't consume enough calories on his own right now. But he only gets it at night. I just hook it up and he gets it while he sleeps.
Robert is doing well, just still recovering from his treatment, and trying to get used to the nausea and taking a bunch of pills. He is taking a LOT. But, everything is going well. Thank you as always for the love and support.
All our love.
Monday, July 27, 2009
Saturday, July 25, 2009
The past couple of days, but we have been busy! Doing a little of this . . .
Robdob has also had some extra fun (well, as much as the hospital will allow anyway!). He and Steve hung out all day, playing video games and getting some guy time. We're pretty sure Robert enjoyed having some testosterone around, and someone to play video games with.
Robert also got lots of love! This is Jinny, she is a friend of Elyssa's and our family's. She is a massage therapist, and Robdob talked her into massaging his feet a little when she came to visit him. Robdob loves having his feet tickled and massaged, and he will take it wherever he can get it, and Jinny is no exception!