Thursday, July 30, 2009
On his way out of the hospital. We will miss all of our wonderful nurses. They were awesome, but we were glad to go!
Getting some R&R and also some food at the same time! Robert is still getting IV nutrition(that white bag), since he can't consume enough calories on his own right now. But he only gets it at night. I just hook it up and he gets it while he sleeps.
Robert is doing well, just still recovering from his treatment, and trying to get used to the nausea and taking a bunch of pills. He is taking a LOT. But, everything is going well. Thank you as always for the love and support.
All our love.
Monday, July 27, 2009
Saturday, July 25, 2009
The past couple of days, but we have been busy! Doing a little of this . . .
Robdob has also had some extra fun (well, as much as the hospital will allow anyway!). He and Steve hung out all day, playing video games and getting some guy time. We're pretty sure Robert enjoyed having some testosterone around, and someone to play video games with.
Robert also got lots of love! This is Jinny, she is a friend of Elyssa's and our family's. She is a massage therapist, and Robdob talked her into massaging his feet a little when she came to visit him. Robdob loves having his feet tickled and massaged, and he will take it wherever he can get it, and Jinny is no exception!
Wednesday, July 22, 2009
He isn't sleeping in this picture, he is trying(not very hard I might add) to keep his peepers open for his "awake" pictures. Robert told me I should stand back farther and zoom in like a "normal" person would, so the flash isn't "all in his face". It made no difference, but, of course, I had to humor him. That's what we side-kicks do.
That's a little better Robert, but I think we should try one more...
Then he gives me something like this, open-eyed rebellion at it's finest.
There they are! Those elusive little buggers. Not many eyelashes, and the eyebrows are going too, but he is doing good, and that's what matters the most!
These open-eyed pictures are a rarity folks, so enjoy em' while you can! ;)
Robert is doing well, his throat and mouth are still sore, but they are on the mend, and we hope within the next couple of days that they heal up even quicker so that he can eat more food. His calorie intake had still ben low, but he eats a little more everyday. His numbers are still looking good, his white count has gone a little low, but that is pretty normal with immuno-suppressive drugs. It'll take them a little time to stabilize completely. All in all, things are going very well, we still haven't seen any signs of GVHD, but we are hopinge to see a little soon. We are anticipating leaving some time next week, hopefully earlier in the week!
We are grateful for you all, as always! We appreciate all you do! Please keep praying for our favorite super hero.
All our love.
Monday, July 20, 2009
Sunday, July 19, 2009
She turned 8 in March and was baptized a few days after her birthday. This is Shayla after her baptism with her dad, Dave, who baptized her:
Shayla is also very flexible, which comes in handy at gymnastics. Above is a picture taken last summer during our trip to Vegas when we last saw Robert.
Here's a little more info about Shayla:
When Shayla was younger, she had VERY curly hair. The curls have since turned into waves. She likes to and is good at doing her own hair. This is Shayla when she was 3:
Robert Update: Robert's pain med pump was discontinued today. Part of the reason for that was because his blood pressure has been on the low side. And, he doesn't need it very much now that his mouth is healing. Before he can leave the hospital, he needs to be consuming 1,000 calories/day and drinking an adequate amount of fluids. He's getting better each day. Thank you for your prayers which are helping that happen!
Friday, July 17, 2009
These are Robert's bags that he is receiving now, it's down from the 15-20 it used to be, and I'm not exaggerating, because I don't joke about IV bags. IV bags are serious business, or something. He was on about 5 antibiotics because of his fevers, so we are glad that those have been stopped. He is still getting his IV nutrition, it's the big bag on the left. They just want to keep him on it until he starts consuming enough calories, it's just making sure that he gets all the things he needs to heal, which I am all about, but Robert "hates that bag".
Robert has been more awake lately, but he is still sleeping an awful lot, but sleep is the best medicine, right? I am just glad he isn't hallucinating anymore. That was a little strange. Robert, of course, doesn't remember any of his hallucinations. I was telling him about couple of them, and he was crackin' up about it. It was nice to give him some comic relief since he has been feeling kind of bummed about not being able to eat, and still being in the hospital. I love his laugh, it's one of my favorite things.
Linda is still here, she was my saving grace a couple of nights I wasn't getting much sleep. It has been super nice having her here to spell me off. I think it's nice for Robert to have his momma around, even though she drives him a little crazy sometimes, he loves her.
Things are moving along great, we are hoping to see a little GVHD (graph vs. host disease) sometime soon. So keep praying for that, please. We are so grateful for our amazing friends and family, and even the people that we don't personally know. We are so blessed to have you all, cheering us on and keeping us in your prayers. We are so grateful!
All our love.
Wednesday, July 15, 2009
Monday, July 13, 2009
Sunday, July 12, 2009
Derek and Uncle Robert have one big thing in common--a love for baseball. Derek's love for baseball began young--around age 2. This picture is from Derek's first T-ball season in May 2004 when he was 5 1/2:
Derek Pitching--May 2009
He was excited to see Uncle Robert after his treatments were completed last summer. We went to the Grand Canyon for a family reunion and spent a few nights in Vegas playing Rock Band and being together.
Here's a little more info about Derek:
What is your favorite color? Blue.
Favorite food? Hamburgers.
Favorite dessert? Oreo Ice Cream Cake.
What do you want to be when you grow up? A professional baseball player.
What is your favorite memory or thing about Uncle Robert? The funny thing he put on his nose when he came to Houston for my baptism. (How convenient--we have a picture of that!)
What is your favorite joke? There's a guy walking through a forest. He is warned by an old gnome that if he steps on any purple mushrooms, he'll have to marry the ugliest lady in the world. As he walks through the forest, avoiding stepping on the purple mushrooms, a very beautiful lady appears. She says, "I have to marry you." He asks, "Why?" She says, "I stepped on one of those pesky, purple mushrooms." Derek catches on to jokes quickly, and laughed quite hard when he realized the guy walking through the forest is the ugliest man in the world.
What is your favorite book? The Alex Rider series. (Derek LOVES to read).
What is your favorite thing to learn about? Math.
Saturday, July 11, 2009
To learn more and/or purchase a cookbook, please go to http://supportforrobdob.blogspot.com/.
Thank you for the support you give in SO many ways. The amount of love and support from family, friends, and even strangers is humbling and inspiring!